Duties and Rights of Biobank Participants: Principled Autonomy, Consent, Voluntariness and Privacy
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Original versionSolbakk, Jan Helge; Holm, Søren; Bjørn, Hofmann [Eds.] The Ethics of Research Biobanking p. 69-84, Springer, 2009 10.1007/978-0-387-93872-1_6
In this chapter the notion of principled autonomy is presented, and the perspective enabled by this notion is applied in the field of biobanking. Some consequences of the perspective of principled autonomy on aspects of biobank recruitment are discussed in relation to concepts of voluntariness, consent, and privacy. These discussions aim to focus on the fruitfulness of the notion of principled autonomy in bringing out the interconnectedness of the duties and rights of biobank participants – both in general, and in a context of taking part in a research-based universal health care system in particular.