Children's Experiences of Living With Asthma: Fear of Exacerbations and Being Ostracized
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Original versionTrollvik, A., & Nordbach, R. (2011). Children's Experiences of Living With Asthma:Fear of Exacerbations and Being Ostracized. Journal of Pediatric Nursing : Nursing Care of Children and Families, 26(4), 295-303.
LIVING WITH A chronic disease often affects a child's whole life, psychologically, physically, socially, and spiritually. Darbyshire, MacDougall, and Schiller (2005) highlight the importance of children-influencing services and facilities that are provided for them. The Convention on the Rights of the Child (Unicef, 2008) enshrines children's rights to participate and to express their views freely in all matters. The Patient's Rights Act (1999) stresses that information must be adapted to the qualifications of the individual recipient, that is, age maturity, experience, and cultural and linguistic background. Thus, when planning learning programs and approaching children, we have to explore children's experiences and needs so that new programs are optimally tailored to the target group. Asthma is the most common childhood disease and longterm medical condition affecting children (Masoli, Fabian, Holt, Beasley, & Global Initiative for Asthma [GINA] Program, 2004). The prevalence of asthma is increasing, and atopic diseases are considered to be a worldwide health problem and an agent of morbidity in children (Masoli et al., 2004).ANorwegian cohort study among 10-year-old children concluded that lifetime prevalence of asthma was 20.2%, current asthma was 11.1%, and doctor diagnosis of asthma was 16.1%, the highest number ever reported in Scandinavia; boys are more affected than girls (Carlsen et al., 2006). A Nordic study of children aged 2–17 years found that asthma, allergies, and eczema were the most commonly reported longterm illnesses (Berntsson, 2000). Many children and their families are thus affected by asthma directly or indirectly. Rydström, Englund, and Sandman (1999) found that children with asthma show signs of uncertainty, guilt, and fear and sometimes they felt like participants other times like outsiders in everyday life. Studies show that children with
This is the postprint version of the article. The published version of the article can be located here: http://www.sciencedirect.com/science/article/pii/S0882596310001569